儿童疾病后健康管理专家共识

Expert consensus on post-illness health management in children

摘要

随着儿科诊疗水平的提升,患儿急性期疾病生存率显著提高,但疾病康复期的健康管理缺失成为影响患儿长远预后的关键因素。目前,国内尚缺乏系统性的儿童疾病后健康管理规范,导致出院后的康复指导与疾病监测存在碎片化问题。本共识旨在针对呼吸系统疾病、神经系统疾病、营养性疾病及其他常见病,构建从医院到家庭的连续性健康管理模式。共识系统阐述了疾病恢复期的临床评估、功能康复、营养保障及心理行为干预路径,特别强调了口腔运动训练、呼吸功能维护及社会心理支持在促进儿童生长发育中的作用。本共识的发布旨在规范临床路径,降低疾病复发率与伤残率,为儿科医师提供科学的随访与康复指导依据,助力患儿身心功能的全面恢复。

Abstract

Advances in pediatric diagnosis and treatment have improved acute-stage survival. However, inadequate health management during recovery has become a major factor affecting children's long-term outcomes. China currently lacks systematic standards for post-illness health management in children, resulting in fragmented post-discharge rehabilitation guidance and disease monitoring. Addressing respiratory, neurological, nutritional, and other common pediatric disorders, this consensus proposes a continuous health management model from hospital to home. It systematically outlines pathways for clinical assessment, functional rehabilitation, nutritional support, and psychological and behavioral interventions during recovery, with particular emphasis on oral-motor training, maintenance of respiratory function, and psychosocial support in promoting children's growth and development. This consensus aims to standardize clinical care pathways, reduce disease recurrence and disability, and provide pediatricians with evidence-based guidance on follow-up and rehabilitation, thereby promoting comprehensive physical and psychological recovery in children.

关键词

疾病恢复期 / 健康管理 / 康复训练 / 全程多维度干预 / 儿童

Key words

convalescence / health management / rehabilitation training / comprehensive multidimensional intervention / children

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基金资助

国家自然科学基金(62471185);广东省重点领域研发计划项目(2023B0303040001)